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Saturday, February 12, 2011

I have not posted anything for a while because I have been kind of  busy. Right after Christmas I decided to repaint the computer room. My house became a disaster. The room is now painted "green energy" (more like mountain dew bottle color ;) and everything is moved back in.Yay! It is much better than it was. It is ready for kindergarten!


One thing I have been struggling with is uncertainty and anxiousness.



Myelle had two seizures on Dec 5, an over an hour long one on Dec 29 (had to stay in the hospital overnight, and she was put on phenobarbital), one on Feb 2, and one yesterday morning which I have no idea how long it was because I found her in her post ictal state at 6:20am. Two of them were non-fever, non-sickness related. Many are focal (affect only one part of her body). Ugh.



She saw a neurologist on Jan 18. He put her on trileptal and took her off the phenobarb. He increased her dose yesterday. She has had an EEG done. We have not heard the results yet. She was going to have an MRI today, but she had a temp of 100.1 rectally yesterday and when the anesthesiologist heard that he did not want to do the MRI. It was rescheduled. 



I never know when I may hear Mye flop on the ground~
BUT
I do know that God knows what is going on. He is watching over Mye!



I need to "Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let (my)requests be made known to God; and the peace of God, which surpasses all understanding, will guard (my) heart(s) and mind(s) through Christ Jesus."
Philippians 4:6,7


What a wonderful thing! 
       

3 comments:

spokenandsaved said...

hey layla!
just wanted to let you know i am praying for you guys and for little mye :) stay strong in the Lord!

Mama in Uganda said...

Wow, I am so sorry.

How scary for a Mama.

Praying.

Blessings and love,
Summer

Unknown said...

Missed you guys at church! Still praying for Mye ;)